TABLE 1

Demographic Characteristics of Survey Pilot Test Respondents

CharacteristicN%
Respondent characteristics 
 Female (n = 252) 232 92.1 
 Education (n = 253)   
  Some high school 2.8 
  High school graduate 24 9.5 
  Some college 61 24.1 
  4-y college graduate 69 27.3 
  More than 4-y college 92 36.4 
Household characteristics 
 No. of adults in household, including respondent (n = 250)   
  1 29 11.6 
  2 166 66.4 
  3 36 14.4 
  4 15 6.0 
  ≥5 1.6 
 No. of children aged <18 y in household, including child the survey asks about (n = 252)   
  0 18 7.1 
  1 84 33.3 
  2 99 39.3 
  3 43 17.1 
  4 2.4 
  ≥5 0.8 
 No. of children with special health care needs in household (n = 252)   
  0 170 67.5 
  1 62 24.6 
  2 16 6.4 
  3 1.2 
  4 0.4 
  ≥5 
Child characteristics 
 Female (n = 252) 120 47.6 
 Age (n = 252)   
  Infant (aged <1 y) 13 5.2 
  1–3 y 45 17.9 
  4–12 y 107 42.5 
  13–17 y 63 25.0 
  ≥18 y  24 9.5 
 Race (n = 251)   
  White 212 84.5 
  African American/black 17 6.8 
  Asian 2.4 
  Native American/Alaskan Native 1.2 
  Native Hawaiian/Pacific Islander 
  Other 13 5.2 
 Hispanic (n = 252) 29 11.5 
 Insurance (n = 250)   
  Medicare/Medicaid 63 25.2 
  Private/commercial 181 72.4 
  No insurance 0.4 
  Don’t know 2.0 
Health care needs of child 
 No. of health care providers contributing to child’s care (n = 253)   
  2–5 111 43.9 
  6–10 91 36.0 
  11–15 26 10.3 
  16–20 11 4.4 
  >20 14 5.5 
 Types of health care provider caring for childa (n = 255)   
  Primary care provider 246 96.5 
  Specialists 166 65.1 
  Home health 54 21.2 
  School health 136 53.3 
  Behavioral health 115 45.1 
  Therapists 167 65.5 
  Social work 57 22.5 
  Alternative medicine 24 9.4 
  Other types 35 13.7 
 No. of emergency department visits (n = 255)   
  Never 124 48.6 
  Once or twice 89 34.9 
  3–5 34 13.3 
  ≥6 3.1 
 Special education service (n = 203) 133 65.5 
 Early education service (n = 50) 39 78.0 
 Medical conditionsa (n = 253)   
  None 25 9.9 
  Behavioral conditions 120 47.4 
  Developmental conditions 117 46.3 
  Breathing conditions 62 24.5 
  Neurologic conditions 138 54.6 
 Child had usual place of care (n = 255) 247 96.9 
 Use of prescription medicine (n = 254) 224 88.2 
 Use of special therapy (n = 254) 181 71.3 
 Use of counseling (n = 255) 160 62.8 
 Use of medical equipment (n = 255) 98 38.4 
CharacteristicN%
Respondent characteristics 
 Female (n = 252) 232 92.1 
 Education (n = 253)   
  Some high school 2.8 
  High school graduate 24 9.5 
  Some college 61 24.1 
  4-y college graduate 69 27.3 
  More than 4-y college 92 36.4 
Household characteristics 
 No. of adults in household, including respondent (n = 250)   
  1 29 11.6 
  2 166 66.4 
  3 36 14.4 
  4 15 6.0 
  ≥5 1.6 
 No. of children aged <18 y in household, including child the survey asks about (n = 252)   
  0 18 7.1 
  1 84 33.3 
  2 99 39.3 
  3 43 17.1 
  4 2.4 
  ≥5 0.8 
 No. of children with special health care needs in household (n = 252)   
  0 170 67.5 
  1 62 24.6 
  2 16 6.4 
  3 1.2 
  4 0.4 
  ≥5 
Child characteristics 
 Female (n = 252) 120 47.6 
 Age (n = 252)   
  Infant (aged <1 y) 13 5.2 
  1–3 y 45 17.9 
  4–12 y 107 42.5 
  13–17 y 63 25.0 
  ≥18 y  24 9.5 
 Race (n = 251)   
  White 212 84.5 
  African American/black 17 6.8 
  Asian 2.4 
  Native American/Alaskan Native 1.2 
  Native Hawaiian/Pacific Islander 
  Other 13 5.2 
 Hispanic (n = 252) 29 11.5 
 Insurance (n = 250)   
  Medicare/Medicaid 63 25.2 
  Private/commercial 181 72.4 
  No insurance 0.4 
  Don’t know 2.0 
Health care needs of child 
 No. of health care providers contributing to child’s care (n = 253)   
  2–5 111 43.9 
  6–10 91 36.0 
  11–15 26 10.3 
  16–20 11 4.4 
  >20 14 5.5 
 Types of health care provider caring for childa (n = 255)   
  Primary care provider 246 96.5 
  Specialists 166 65.1 
  Home health 54 21.2 
  School health 136 53.3 
  Behavioral health 115 45.1 
  Therapists 167 65.5 
  Social work 57 22.5 
  Alternative medicine 24 9.4 
  Other types 35 13.7 
 No. of emergency department visits (n = 255)   
  Never 124 48.6 
  Once or twice 89 34.9 
  3–5 34 13.3 
  ≥6 3.1 
 Special education service (n = 203) 133 65.5 
 Early education service (n = 50) 39 78.0 
 Medical conditionsa (n = 253)   
  None 25 9.9 
  Behavioral conditions 120 47.4 
  Developmental conditions 117 46.3 
  Breathing conditions 62 24.5 
  Neurologic conditions 138 54.6 
 Child had usual place of care (n = 255) 247 96.9 
 Use of prescription medicine (n = 254) 224 88.2 
 Use of special therapy (n = 254) 181 71.3 
 Use of counseling (n = 255) 160 62.8 
 Use of medical equipment (n = 255) 98 38.4 
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