Item Descriptive Statistics and Test–Retest Reliability
| Factor . | N . | Response Category number . | % Responses in Bottom Boxa . | % Responses in Bottom 2 Boxesb . | 25% Percentile . | Mean ± SD . | Median . | 75% Percentile . | % Response in Top 2 Boxesc . | % Responses in Top Boxd . | κe . |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Factor 1: access to care | |||||||||||
| Delays: lack of sufficient servicesf | 255 | 6 | 1.6 | 10.2 | 4 | 4.4 ± 1.26 | 4 | 5 | 49.0 | 23.1 | 0.61 |
| Delays: lack of informationf | 255 | 6 | 1.6 | 3.5 | 5 | 5.1 ± 1.10 | 5 | 6 | 76.5 | 46.3 | 0.47 |
| Factor 2: communication with CTMs | |||||||||||
| CTMs explained things in understandable manner | 255 | 6 | 0.5 | 0.8 | 5 | 5.2 ± 0.90 | 5 | 6 | 77.6 | 40.8 | 0.58 |
| Family comfortable voicing concerns with CTMs | 246 | 6 | 1.2 | 2.0 | 5 | 5.4 ± 1.03 | 6 | 6 | 83.3 | 63.4 | 0.55 |
| CTMs listened carefully to what family had to say | 255 | 6 | 0.8 | 1.2 | 4 | 5.0 ± 0.99 | 5 | 6 | 74.5 | 39.2 | 0.70 |
| CTMs treated family as a full partner | 253 | 6 | 1.2 | 2.8 | 5 | 5.2 ± 1.12 | 6 | 6 | 76.3 | 52.6 | 0.64 |
| Factor 3: family impact | |||||||||||
| CTMs discussed things that cause family stress | 252 | 6 | 40.1 | 66.7 | 1 | 2.2 ± 1.34 | 2 | 3 | 7.5 | 3.6 | 0.50 |
| CTMs discussed things that made it hard to care for child | 253 | 6 | 45.1 | 70.4 | 1 | 2.1 ± 1.29 | 2 | 3 | 6.3 | 3.2 | 0.62 |
| CTMs took the whole family into account | 253 | 6 | 18.6 | 40.7 | 2 | 3.5 ± 1.84 | 3 | 5 | 36.0 | 21.3 | 0.59 |
| CTMs offered other than in-person communication | 255 | 6 | 20.8 | 31.0 | 2 | 3.5 ± 1.77 | 3 | 5 | 32.9 | 18.8 | 0.52 |
| CTMs offered peer connections | 254 | 6 | 60.6 | 76.4 | 1 | 1.9 ± 1.34 | 1 | 2 | 7.5 | 3.9 | 0.42 |
| Factor 4: care goal creation/planning | |||||||||||
| CTMs created short-term care goals | 251 | 2 | 51.8 | NA | 0 | 0.5 ± 0.50 | 0 | 1 | NA | 48.2 | 0.53 |
| CTMs created long-term care goals | 252 | 2 | 63.5 | NA | 0 | 0.4 ± 0.48 | 0 | 1 | NA | 36.5 | 0.49 |
| Factor 5: team functioning/quality | |||||||||||
| CTMs knew about advice from other CTMs | 255 | 6 | 5.1 | 19.2 | 3 | 3.9 ± 1.49 | 4 | 5 | 38.8 | 19.2 | 0.65 |
| CTMs assigned and explained responsibility | 253 | 6 | 20.6 | 37.2 | 2 | 3.4 ± 1.78 | 3 | 5 | 34.4 | 16.2 | 0.63 |
| CTMs aware of tests and evaluations | 255 | 6 | 9.4 | 19.6 | 3 | 4.1 ± 1.64 | 4 | 6 | 47.1 | 27.1 | 0.65 |
| CTMs followed through on responsibilities | 255 | 6 | 2.8 | 4.3 | 4 | 4.8 ± 1.23 | 5 | 6 | 69.0 | 36.5 | 0.65 |
| CTMs considered “big picture” | 254 | 6 | 3.9 | 14.6 | 3 | 4.1 ± 1.45 | 4 | 5 | 46.9 | 22.4 | 0.68 |
| CTMs had access to same medical record | 254 | 2 | 38.2 | NA | 0 | 0.6 ± 0.49 | 1 | 1 | NA | 61.8 | 0.62 |
| Factor . | N . | Response Category number . | % Responses in Bottom Boxa . | % Responses in Bottom 2 Boxesb . | 25% Percentile . | Mean ± SD . | Median . | 75% Percentile . | % Response in Top 2 Boxesc . | % Responses in Top Boxd . | κe . |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Factor 1: access to care | |||||||||||
| Delays: lack of sufficient servicesf | 255 | 6 | 1.6 | 10.2 | 4 | 4.4 ± 1.26 | 4 | 5 | 49.0 | 23.1 | 0.61 |
| Delays: lack of informationf | 255 | 6 | 1.6 | 3.5 | 5 | 5.1 ± 1.10 | 5 | 6 | 76.5 | 46.3 | 0.47 |
| Factor 2: communication with CTMs | |||||||||||
| CTMs explained things in understandable manner | 255 | 6 | 0.5 | 0.8 | 5 | 5.2 ± 0.90 | 5 | 6 | 77.6 | 40.8 | 0.58 |
| Family comfortable voicing concerns with CTMs | 246 | 6 | 1.2 | 2.0 | 5 | 5.4 ± 1.03 | 6 | 6 | 83.3 | 63.4 | 0.55 |
| CTMs listened carefully to what family had to say | 255 | 6 | 0.8 | 1.2 | 4 | 5.0 ± 0.99 | 5 | 6 | 74.5 | 39.2 | 0.70 |
| CTMs treated family as a full partner | 253 | 6 | 1.2 | 2.8 | 5 | 5.2 ± 1.12 | 6 | 6 | 76.3 | 52.6 | 0.64 |
| Factor 3: family impact | |||||||||||
| CTMs discussed things that cause family stress | 252 | 6 | 40.1 | 66.7 | 1 | 2.2 ± 1.34 | 2 | 3 | 7.5 | 3.6 | 0.50 |
| CTMs discussed things that made it hard to care for child | 253 | 6 | 45.1 | 70.4 | 1 | 2.1 ± 1.29 | 2 | 3 | 6.3 | 3.2 | 0.62 |
| CTMs took the whole family into account | 253 | 6 | 18.6 | 40.7 | 2 | 3.5 ± 1.84 | 3 | 5 | 36.0 | 21.3 | 0.59 |
| CTMs offered other than in-person communication | 255 | 6 | 20.8 | 31.0 | 2 | 3.5 ± 1.77 | 3 | 5 | 32.9 | 18.8 | 0.52 |
| CTMs offered peer connections | 254 | 6 | 60.6 | 76.4 | 1 | 1.9 ± 1.34 | 1 | 2 | 7.5 | 3.9 | 0.42 |
| Factor 4: care goal creation/planning | |||||||||||
| CTMs created short-term care goals | 251 | 2 | 51.8 | NA | 0 | 0.5 ± 0.50 | 0 | 1 | NA | 48.2 | 0.53 |
| CTMs created long-term care goals | 252 | 2 | 63.5 | NA | 0 | 0.4 ± 0.48 | 0 | 1 | NA | 36.5 | 0.49 |
| Factor 5: team functioning/quality | |||||||||||
| CTMs knew about advice from other CTMs | 255 | 6 | 5.1 | 19.2 | 3 | 3.9 ± 1.49 | 4 | 5 | 38.8 | 19.2 | 0.65 |
| CTMs assigned and explained responsibility | 253 | 6 | 20.6 | 37.2 | 2 | 3.4 ± 1.78 | 3 | 5 | 34.4 | 16.2 | 0.63 |
| CTMs aware of tests and evaluations | 255 | 6 | 9.4 | 19.6 | 3 | 4.1 ± 1.64 | 4 | 6 | 47.1 | 27.1 | 0.65 |
| CTMs followed through on responsibilities | 255 | 6 | 2.8 | 4.3 | 4 | 4.8 ± 1.23 | 5 | 6 | 69.0 | 36.5 | 0.65 |
| CTMs considered “big picture” | 254 | 6 | 3.9 | 14.6 | 3 | 4.1 ± 1.45 | 4 | 5 | 46.9 | 22.4 | 0.68 |
| CTMs had access to same medical record | 254 | 2 | 38.2 | NA | 0 | 0.6 ± 0.49 | 1 | 1 | NA | 61.8 | 0.62 |
CTM, care team member; NA, not applicable.
Bottom box: Least favorable response option.
Bottom 2 boxes: 2 least favorable response options.
Top 2 boxes: 2 most favorable response options.
Top box: Most favorable response option.
Sample size for test–retest reliability, n = 118.
This item is reverse coded; thus, higher values indicate better performance.